June 2, 2000  

No. 189

LEGISLATIVE UPDATE

* Family Opportunity Act - S. 2274WE STILL NEED MORE CO-SPONSORS. We will not stop until we urge all of our Senators to co-sponsor this family friendly legislation that will help families of children with disabilities and special health care needs to receive Medicaid. This bill helps families caring for a child with disabilities and special health care needs access needed Medicaid services. Access the NPND website ( www.npnd.org ) for the summary and full text of this legislation.

ACTION NEEDED
The two sponsors of this bill need the support of your Senators to pass the bill this year. Our Senators need to know how important this act will be to families caring for a child with a disability.

  • Contact your Senator and urge their support for S. 2274.

  • Please write a short letter telling your Senator "Why your family needs Medicaid?" We especially need the support of the following Senators: (T Stevens, AK; F Murkowski, AK; J McCain, AZ; W Allard, CO; M Crapo, ID; S Abraham, MI; R Grams, MN; J Ashcroft, MO; C Bond, MO; C Hagel, NE; G Smith, OR; A Specter, PA; K Hutchison, TX; R Bennett, UT; J Warner, VA).

  • Send your letters to NPND and we will deliver the letters personally to each Senator's office.

    WHO SHOULD WRITE AND CALL??

  • If you have been unable to take a promotion or better your income, because you would lose your child's Medicaid.

  • If you have been told that you don't qualify for the Medicaid that your child needs to fill in the gaps of an employee health plan.

  • If all you need is Medicaid to help you keep your child at home with you.

MESSAGE

Please co-sponsor S. 2274, the Family Opportunity Act. As a parent of a special needs child, I know first hand the challenges of caring for a child with disabilities and special health care needs. We are asking for your help. We need improved access to special health care services.

 

This bill would allow us, as parents, to pay a This bill would allow us, as parents, to pay a premium for necessary Medicaid services for our child.

CONTACT INFORMATION
www.senate.gov   / U.S. Capitol Switchboard: 202-224-3121

*Medicaid Community Attendant Services and Supports Act-S. 1935 - Rally MiCASSA will reform the institutionally biased long term care system. It allows people with disabilities and/or families to have a Real Choice of where and how support services are delivered. A Rally to support home and community services and to oppose the institutionally biased long-term care system is scheduled for June 18th at 1:00 PM at Upper Senate Park in Washington, D.C. The rally will send a message to Congress, President Clinton and both presidential candidates that the disability and aging advocacy communities want REFORM. Many national, regional, state and local groups have already agreed to co-sponsor the rally. For more information contact 512-442-0252 or 303-733-9324; adapt@adapt.org


* ARCH Funding for FY 2001 We need to ensure that language is included in the final FY 2001 Appropriations bills that protects ARCH at $750,000 and allows them to continue current activities and to expand training, technical assistance, evaluation, startup and networking activities to providers and users of lifespan respite. Right now ARCH is restricted to providing respite and crisis care guidance only to providers and users of respite and crisis care for children, despite the fact that state coalitions are working actively on promoting lifespan respite services and ARCH receives numerous calls everyday asking for assistance in this area. Any efforts to promote lifespan respite nationally or in the states will be seriously jeopardized if ARCH is unable to participate. For more information, contact Jill Kagan, Chair, National Respite Coalition at 703-256-9578 or jbkagan@aol.com

ACTION NEEDED

Contact your Senators and urge them to speak directly to Senators Specter (R-PA) and Harkin (D-IA) to include language in the final bill that protects ARCH.

CONTACT INFORMATION
www.senate.gov  / U.S. Capitol Switchboard: 202-224-3121

FOR YOUR INFORMATION


* VOTE *

 Remember, one vote can make a difference. Register to Vote Online at http://www.fec.gov/votregis/vr.htm

* FCC Protects Consumers with Disabilities - The Disabilities Rights Office (DRO) is a new office within the Consumer Information Bureau at the Federal Communications Commission. The FCC enforces laws that make sure that people with disabilities have access to electronic communications. Anyone can receive free information about FCC activities from the DRO Information Mailing List, DROinfo, by subscribing directly. Send an E-mail to subscribe@info.fcc.gov with "subscribed droinfo, your first and last name." Or visit http://www.fcc.gov/cib/dro 

 

   * FannieMae Homeownership Guide - For people with disabilities the dream of owning a home is either rarely consideredor typically discouraged. This guide reflects a new vision for people with disabilities, as well as the housing industry that has begun to serve them. Fannie Mae is a Congressionally chartered, shareholder-owned company, and the nation's largest source of mortgage funds. Access the Guide at: http://alliance.unh.edu/aauntitled.folder.1/
TC.html

* Brochure: Adapting Motor Vehicles for People with Disabilities The information in this brochure is based on the experience of driver rehabilitation specialists and other professionals who work with individuals who require adaptive devices for their motor vehicles. Access the Brochure at: http:// www.nhtsa.dot.gov/cars/rules/ adaptive/ brochure/ brochure.html