Below is information for families and professionals about a "Care
Notebook" developed by Children's Hospital and Regional Medical Center and
the Washington State Department of Health, Office of Children with Special
Health Care Needs. They have graciously made all 39 forms they've developed
available for download! They are pdf files (so you'll need to download the pdf
software if you don't already have it available). The categories of forms
include: Pages to Keep Track of Appointments and Care, Pages to Create a Care
Summary: Abilities and Special Care Needs, Pages to Create a Care Team and
Since we have talked about the usefulness of notebooks on these discussion groups, I thought some of you may be interested in this new resource.
The Care Notebook
The Care Notebook is an organizer for families who have children with special health care needs. Families use Care Notebooks to keep track of important information about their child's health and care. This makes it easier to find and to share key information with others on their child's care team.
The original Care Notebook is a 3-ring binder. The Care Notebook contains supplies that make it easier to find information quickly. These supplies include plastic pages that hold business cards, several pocket dividers that hold papers, growth charts, and an immunization card. The Care Notebook also contains forms that families may fill in. These 39 forms are now available for families and for health care and other service providers who work with families with children with special health needs through the Internet site of the Institute for Child Health Policy.
Internet address is: http://www.ichp.edu/cshcn_misc/materials/903120264.html
Or go to http://www.ichp.edu and search for "care notebook"
How can a Care Notebook help?
In caring for a child with special health needs, families may get information and paperwork from many sources. Care Notebooks help families organize the most important information in a central place. Care Notebooks make it easier to find and to share key information with others who are part of a child's care team.
What is available on the Web?
The Care Notebook offers 39 forms families may fill in to help keep track of their childs health care information. Families may use these pages to keep track of appointments and health care, to create a list of their care team and resources, and to create a summary of their child's abilities and care needs. Most families do not need or want every page.
The Care Notebook was developed with invaluable input from parents and community health care providers. Care Notebooks were produced by Children's Hospital and Regional Medical Center and the Washington State Department of Health, Office of Children with Special Health Care Needs (Contract #1640-01897)
Lynn Kratz, Family Centered Care Liaison
Jean Popalisky, Nurse Consultant
Marilyn Denney, Nurse Consultant
The Washington State Department of Health
The Office Of Children With Special Health Care Needs
Comments about the Care Notebook should be addressed to firstname.lastname@example.org
This message about the availability of the Care Notebook was posted by:
John Reiss, Ph.D.
Director, Policy and Program Affairs
Institute for Child Health Policy
5700 SW 34th Street, Suite 323
Gainesville, FL 32608
352-392-5904, ext. 224; FAX 352-392-8822