Opportunity to help with Cerebral Palsy research
Are you the parent of a 4.5-5.5 year old child with severe cerebral palsy? If so, here's an opportunity to participate in a research project that will provide good information for other families and service providers.
I am looking for parents to interview on the phone (about 30 minutes) about how their child gets around the home and community, and on quality of life for your family and your child.
This is research for a doctoral dissertation at the University of North Carolina at Chapel Hill, School of Education. The project has been approved by the university.
Participants will sign "informed consent" forms before being interviewed. I am a pediatric physical therapist working for a degree in Special Ed with a focus on early intervention. There is so much that is not publicly known about children with severe CP, and it is very difficult to locate parents directly for information. This website offers a great opportunity to do that. There is no risk to you in participating; all information will be treated totally confidentially. There is no particular benefit to you either, except that you will receive $20 for agreeing to be interviewed. I have thoroughly enjoyed the interviews so far, and am learning things that I have not read in journals! My results will be published, so what you have to say will become known.
The children I'm collecting information about have some ability to get around on the floor, but have difficulty sitting alone. They may be power chair users. They may be using supportive walkers such as a Pony or Mulholland, but not a posterior walker. If you have any questions, or would like to participate, you can email me at firstname.lastname@example.org.